THE COX KIDS HOMEPAGE
URGENT PRAYER REQUEST
Prayer Changes things! It hasn't let us down! It can take bad awful things and situations and make them Good. We can do all things through Christ that strengthens us! Thanks to the many who are praying and to the love and support we can always count on.
Jake is doing really poorly. He is worse than he was at the hospital. We did soeak to the GI doctor who confirmed it is still C-Diff. I know we all have it and I fear we will never get rid of this as the doctors need scopes to treat it and by the time one starts to get better, another one is just getting treated and so on. This has taken my health and messed up my heart and I am so concerned about all of us but Jake is the worst I have ever seen him since he was a baby with menegitisis. All three kids have gone through a lot of illness but nothing this bad for this long.
Right now, Jake is super weak and we don't know what to do. They are starting him on Vancomycin again but he is so sick, he has nothing on his stomach as he has stopped eating and I am just trying to keep fluids in him. Please pray as he is about to give up. School was to begin today but Jake was too sick. He is unable to even think clearly. Please pray as watching this happen to your child is awful. We do pray this new GI doctor can help us. We know he is in God"s hands and we are seeking His will and direction. This ia a very bad bacteria that kills and destroys normal peoples lives but for our kids, it is so much more and so hard to kick.
We fear we all have it and plan to all be checked. This is what has made me so sick and Chris doesn't want to admit it but he knows we have to all be checked.
I know many already know that Jake has been very sick for over a year now. In the past weeks, he has gotten a lot worse. He has lost a total of 25 pounds and his highest weight was 115 pounds so that is a lot off. We had fought C-Diff and Samuel and I had a hard time with that but we got some better and Jake gained some back but then lost it again. He has no energy, weak, pale and sleeps a lot of the time. Jake has always been a self starter and was to begin college classes next week but he is even having some problems with focus. He loves the guitar and his teacher but this too he hasn't been able to do that.
To see your child slowly stop living is an awful thing and to feel so helpless. ON top of this, we have had issues with GI care and we finally have the right doctors working with us. One doctor here said he thought the boys needed feeding tubes and I have always been against that but now, with Jake this skinny and unable to eat, I don't see how he can live like this and go on without one and if that needs to be done, I am now ok with it. I just knew he had this and don't see a feeding tube helping if their is bacteria there.
We are in Ohio for marrows and tests and Grace was found to have a female issue that we believe God will heal and we will seek care for her as at this point until we see a specialist, there is no need to call it by name, we trust God she will carry her own children or adapt either way as she has a tender love for babies. We were told she needs an MRI to establish what is going on and make certain we know she is ok.
Please pray for Samuel as he jaw is still broke and bother's him. His jaw doctor has transferred to another hospital and once he gets settld, we will see him there.
The marrows cam back and we are concered. All three had Myloid to Eryroid ratios and Jake's hypocelluar as all of them have been for years but his was as low as 15%. Samuel had the same odd shaped red cells as his siblings but these tear drop shaped cells and he needs further investgation on a Chromsome abnormality. We plan to see what our doctors says.
My Cup Runneth Over" is a quote from the Hebrew Bible (Psalms 23:5) and means "I have more than enough for my needs" though interpretations and usage may vary. Notably, it can be employed sarcastically to indicate that someone, e.g. one's host, is being less than generous
This above definition seems to be the best one we can use to describe all the love the contuinues to bless us and wash all over us. We thank Jesus for His abiding love. This verse made into a song, which I sang throughout my SundaySchool Years with hand motions and all, a child's song, has such meaning for us.Click on the link www.Intrigue-Photography.com/darkroom/share
password: Freezin (you must use the Cap for the F and then reezin in lower case) IF anyone cannot pull this up let us know at christopherncox@yahoo.com. We have recieved a few who weren't able to view so we hope this helps,
PLEASE VISIT OUR MISSIONS/FRIENDS?BUISNESS LINK ABOVE TO SEE ALL THE AMAZING SUPPORTERS, WE THANK EVERYONE THERE.
Please note, we do not sell any products at all through this or any other way. Any donations can go through our church and any cards and letters can be mailed to PO Box 1360, Lake Junaluska, NC 28745, You can email us at christopherncox@yahoo.com Please know that the we desperately need prayer and we are able to function because of them. We can feel when we are being prayed for. Thank you so much and God Bless each of you.
First Annual Runnin For A ReasonOur Cup Runneth Over
As I said, Our Cup Runneth Over and again, God has blessed us and our children through so many who just want to help in anyway they can. For the mother out there with her sister running today who has an SDS child, I will get in touch with you and all I can say is bless your heart and your childs! To you I pray you can find support and help as we have. For everyone that prayed and ran and sponsored runners, thank you. We did hear there was some rain but some said it felt good. There were runners who went anywhere between 1 and 10K!!! When something so wonderful happens, it isn't easy for me to put down a few words, that's my husbands department and he can do it with all the same love. Thats him, this is me. When your home town has just taken care of your family again, it warrents talk! thought this video was fitting that he sent us today and wanted to share it with all of our friends and familiy and if you were their today and those of you who continue to pray for our family.http://www.openmyeyeslord.net/ThisJourney.htm
As each New Year arrives, Lake Winnebago, a small town on a Lake Winnebago puts on a huge celebration called Frezzin For a Reason where this lake community we once called hom and in our minds will always be home, have many people swim and ski in the frigid Missouri Temps. We had a lovely home and I remember pulling into our driveway and thinking, is this really our house? Chris would say no it's the banks! The point is, it was a dream living there and to this day, my kids wish we could go home but we have learned home is where your heart is. We veiw things much differently now. Still, Lake Winnebago is truley a wonderful place to live and why it is so great isn't just the lake, activities, Christmas and Easter parties but the people who live there and call it home. They are part of our family just as our church is and we have been double blessed by both. We must include that other Lakes also have joined in, Lake Latawona and Lake Prarie Lee. It is incrediable and nothing short of a miracle!
Abundant Life is the heart and soul of who we are in Christ because they made us stronger by teaching us how to teach ourselves, To feed our family, His word and when you learn to lean on His Word and not a church or a group of people, though we have those as extra benefits, you are able to stand steadfast. You must become BROKEN and we mean SOLD OUT to Him. Never dening where your next breath comes from or your tomorrows. I have known Jesus since I was a small child. He was and will always be my best friend and I know He has me even when I doubt myself. To be one in Christ is to be FREE! No one can ever take that from you. I was fortunate to know Him from a very young age and He has brought me through some rough times.
I had a strong relationship with Him but I had not learned how to really be able without Sunday School or Chruch to teach oneself. It is critical to always be growing in Him, knowing Him. Fellowship is very important too but it doesn't always mean you must be present in body, though who would not want to be if they could? We miss that so much. Each Sunday, weather in a church or at home in church, we are still very much apart of the place we still fell we get what we need along with our daily walk.
It is not a Religion, it is a relationship and a way of living. It doesn't make us perfect, in fact, to be a Christian you must first admit you are a sinner! That means we sin, we do bad, wrong things even when we do not know it and when we do, we strive not to but fall short. We are not better than anyone else, maybe just a bit more aware of how messed up we really are! It is a path a road and journey and sometimes we really mess it up. All we can do is ask forgiveness.
Christ gave us a crash course, we either bucked up and obeyed and soaked up His words to walk the Life or we drown in our own self pity and greif. We had two ways to look at things, either we were cursed and I know my sweet children aren't that or we would be made stronger and as a result and thank Him for every time we go through another trail because we are suffering to become more like Him !
May 1st, 2010, location Lake Winnebago MO, Contact information, Monte Seabaugh 816-537-4123 or Abundant Life Church 816-554-8181 ask for Dave Williams or Matt Hitson. Also you can call Machelle Riffe, 816-507-3448 and Christopher Cox 816-522-5677 email christopherncox@yahoo.com.
Our Family and Friends who never Forgot
We have so much to be thankful for, we miss our home like never before and each day when we're away, we stop and think and remember to pray, for all of those so close to our heart, even though they are far apart. So many faces and friends we see and still in our hearts they'll always be. On lonely days and cold nights, we know our Lord knows whats right.
He gives us such sweet memories and we carry these times in our hearts, wondering if all our old and dear friends still miss our part. One thing for sure we know is true, He gave us life for me and you and oneday very soon, well join together all full of joy and the pain we felt will being apart, won't matter a bit cause we held strong at heart. We'll sing and shout His great praise, our cares of this world all passed away and in it's place His AMAZING GRACE!
Thank you all who we love so much and know we think and pray for all of you. We have not forgotten anyone and we love you all and God Bless each of you double what you have blessed to us.
Love Always,
The Cox Family
We want to say a big thanks to all those who came out to Lake Winnebago. I am glad Chris and Grace were able to be there but bummed the whole family couldn't have come. I missed so many of my dear sweet friends and their kids. Thank everyone who made it out. We heard there was a huge turnout and we want to thank the Kansas City Star, Grandveiw Paper, Lee's Summit Journal and all the television stations who came.
http://www.kctv5.com/news/22107077/detail.html# This is the video of the event. Chris and Grace covered it this time and we thank channel five who always cover the event so well.
Our kids have an Immune disease too and Grace has a kidney disease. We believe they are all linked and oneday, if only in heaven, we will know. We can tell you this, money given is put into a trust and we are careful of every dime spent, knowing someone gave up their earnings for us. We answer to God and so do all those who give in any way to our family.
THE LOECKEN FAMILY WILL BE ON GOODMORNING AMERICA !
This is a sweet family who are working in the spirit to change the world. There story is uplifting and encouraging. It will be on Oct. 30th as they travel to Time Square in New York. We are so excited for them and our prayers are with them!
Please, see our links above as we have so many people and things to explore besides this disease and our family. We most want to convey that this is our families webpage and we use it for His glory. We have been thorugh some hardships, just as anyone and want to share this to allow others to pray and uplift our family and to give Him above all, the first place in our life.
Our family at Camp Sunshine
Feel free to contact us at mycoxkids@yahoo.com please know we recieve and try hard to keep up on the e-mails but sometimes we may miss a few, forgive us and keep trying. Our family can be reached at 816-694-1040.
DO NOT CLICK ON ANYTHING TAKING YOU OUT OF OUR WEBSITE. THIS IS A SCAM. WE NEVER SELL PRODUCTS OR SERVICES. WE HAVE MADE ATTEMPTS TO REMOVE THIS BUT THIS IS A HOSTING SITE THAT IS SELF MADE and cheap, we do plan to establish a new web page. IT IS NOT SECURE. SOME COMPUTERS WILL SHOW IT, SOME WON'T. Sorry for this but it doesn't really bother us and will soon have anoher web page. Thanks for undertanding.
Our E-mail Address Is Below
THIS PICTURE WAS TAKEN FROM A WEDDING OF A FAMILY MEMBER THAT IS DEAR TO US. SHE INCLUDED ALL THREE IN HER SPECIAL DAY.
