THE COX KIDS HOMEPAGE

                             Cox Kids Homepage

This page is about a family, with three kids named Jake, Grace and Samuel Cox. They are a gift from God and though they were born with many health issues, including an Inheriated Bone Marrow Disease and Primary Immune Disease and Grace, Multicystic Kidney Disease. All unknown to the parents, even when they visited top hospitals. It took until Samuel was born, for anyone to understand how sick these babies really were. They had been sick often and fought off lifethreatning infection as neutropenia was the first clue, which fight off bacteria infection, leaving then wide open with a life-threatning disease that continued to get worse. The past 2 in a half years, Jake, their oldest has been too sick to much of anything.  He is now a very sick young man. Just turned 18 and all his hard work of getting through school early to be in a program where he could earn both a High School and College degree, were gone.  He developed C-Diff from me, I had picked it up and brough a very bad strain upon him. We suffer this together but I do not have 100 pounds on a 5'9 frame but both of us need help and it there is away to heal his intistines, a fecal transplant from a donor would likley cure him and myself, he could go on as each day new information in Germany and around the world is leading to a greater understanding, including, weather Shwachman-Diamond Syndrome is the right Inheriated Bone Marrow Disease. 

Updates: Jake's marrow, shows his Iron stores are depleted. Jake is eating and takes Supplimed which contains everything he needs plus very high calories. He is just not able to maintain his weight. The marrow suggests it is due to a Metabolistic disease or a Intestinal Bleed. We never knew that could show up on a Marrow. He also is extremly low in Cellularity which has gone down every year. At 15%, we also found that Grace and Samuel's are also low for their age. They had many finding that we are concerning. We are confussed and asking for direction as we seek the best care for our children. In light of this odd finding, we will wait on the fecal transplant until we know more.

 It doesn't stop there, my husband has had difficulty in finding full time work, even though most plans would not be effected by us but employeers shy away from an impeccable resume and a very taleted hard working father with the added strain of a wife not always as strong as she once was but like her children, she would never allow a day missed from work and he never made the 19 hour drives or eight hours drives to recieve Bone Marrow Biopsy's or IVIG. Always leaving two along and afraid, staying with the youngest. We have up everything to save their lives by leaving home but an amazing thing happened, home didn't leave them!  Something we never counted on, a miracle you can call itstraight from heaven but both their home town church of Abundant Life Baptist in Lee's Summit and their many friends and family would gather around us to support us. What went even further beyond the support, love and several fundraisers from the church was the community we lived in. Lake Winnebago Missouri. This was and in our hearts feel like home and we didn't want to leave but when someone says your kids need transplants or they will die, you leave the company you were invested in,, giving up all options and your dream home on a lake, you knew medical bills would destroy your credit but we didn't get the kickbacks, we lived in our travel trailer until our home sold. The community put theirselves in our position and they put their love in action. As losted below from two scriptures, God has allowed a miracle to help us stay on private insurance as only a few in the US know what they have and were free to make the best choices as we are doing for Jake, working to find a doctor who won't give up but will continue the fight. We have been told and we have watched our kids come close to death but they belong to a higher power and until He send for them to heal them eternally, no telling what these very special kids with these very special people will do!

 As parents, there aren't words to describe, nor can we ever pay back but we can pay forward, helping those in need on our path and giving encourgement of how mankind working together can make all the difference in the world. To all those who began and continue Freezin for a Reason, we owe our children's lives, along with God of course. Your acts of kindness to one family who still want to come home and in our hearts it is home. Yet we must battle until we feel we have done all we can and the day our kids say, "lets go home" we as parents hold on because such people with such faith in us, who pray and think of us, carry us through some very dark times.

                     6th Annual Freezin For A Reason, Winnebago Wizzards true heros's. Each year, our home town supports our family through a very frezzin way! They ski in frigid temps of the Midwest Missouri Temps. Many gather, friends, church, family and they work so hard, give of time, food, prayer, money and love. This year's was a tremendous blessing and we thank with all our hearts every person who reaches out to help our family. We are constantly blown away by the love we feel. You all are helping to save our family! How can we express in words alone, what we feel. How can we repay, we cannot. We can share with you our deep commitment to faith. We have seen what it can do. We can pray this, that each of you are blessed back by His love and please know, we are here for anyone and just because we may need, doesn't give us an excuse to only take. We are here to listen, to do anything we can and most of all to love. God knows the heart and therfore, we can't fool Him.  In the Bible their are two very different scripures: Dear Lake Winnebago and friends, these scriptures just came to me as I was reading oneday. I remember an older women years ago, who gave a lot to her at Lake Winnebago spaghetti dinner. She didn't really have it to give but she did and sent a letter telling me she wish it could be more and her prayers were with us. I feel the scripture below fits her well. It also holds true to even us, when we have been down, not helping another in need, doesn't excuse us. He expects all to give. It speads and soon others joined in from surrounding towns and news of old friends surfaced. The pure joy of helping begins to grow on some, other's always had it there. This is a story so deep and touching that we want others to hear of it. Most of all we thank God that He has allowed such blessings upon us. Our road is long and we face bills and illnesses we do not know how to battle but we know we have a group of amazing people who are battling it with us. Thank You, seems so small but it's all we can offer for now.

 Luke  21:1] As he looked up, Jesus saw the rich putting their gifts into the temple treasury. [2] He also saw a poor widow put in two very small copper coins. [3] "I tell you the truth," he said, "this poor widow has put in more than all the others. [4] All these people gave their gifts out of their wealth; but she out of her poverty put in all she had to live on."

This scripture may fit some at Winnebago and friends, we do not know, we do know that God knows the heart of everyman and we know, that so many of you will be blessed when standing before Him.  No matter what you believe, your lives will be blessed. Please, if their are any prayers we can give for any of you, we really want to know. Thank all of you.

Feel free to contact us  via songofsolomon867@yahoo.com. @yahoo.com  please know we recieve and try hard to keep up on the e-mails but sometimes we may miss a few, forgive us and keep trying.  Our family can be reached at 816-694-1040. We welcome gifts and go through either Rich Lapetria at816-213-3037 for Freezin For a Reason. http://lakewinnebago.org/ or facebook https://www.facebook.com/#!/group.php?gid=53106666027.  Lake Winnebago Wizards

Our needs are tremendous and we have been blessed in so many ways. Yet we still are in need of some unanswered prayers. We are working hard to find the answers and ask prayer for those to be revieled.