Fundraiser Links
It is such a privelege to have a community of friends, family and many who have made us a part of their hearts and carry us in their thoughts. We are amazed and overwhelmed by the love that is given and that love is so real. We each feel it and throughout the hard times, a sick child, my trouble with finding a full time job with benefits, it can make a man feel defeated and helpless.
Yet, each time we find ourselves wanting to throw in the towel, asking why and feling sorry for ourselves, we can't help but know how loved we are, how many care and that is faith in action! It's real. In hard tims when finding anything real becomes harder to find, we have to continue to try and push ourselves through the dark and tiring moments. I am a father of three sick kids. I am responsible for their care and while I believe we need Medicare and Medicaid, I also believe that because I lost my job, I am terrified of the future for my kids. I have been blessed to have received more education and become a Regitered Therapist where I had been a very blessed Certified Therapist in KC. We took for granted so many things. Yes, we had the kids and they had periods of illness and each in infancy gave us a scare but they were living a great life. My wife had researched everything until we finally received the news that we both knew deep down, they all three had a Genetic Bone Marrow Disease and Immune issues, along wit Grace and her Multicysitic Kidney disease. Finding out this past year that there are even more problems with Grace and knowing we must find a place to take them.
It's hard to even know where to go for you learn that things always go smooth and the doctor we had here was special, very special. Yet , with retirement and he being their Bone Marrow Doctor who realy needs to oversee eveything, simply isn't able too. The trust in the GI department and even within the circle of the handful of doctors who know all about your kids, you wonder if they will be fair. We need to be where he can move onto an adult care and still be close to childrens care. More than anything, we pray our son would heal and my wife who isn't to well would follow up on care. Beyond that, I pray for a JOB with benefits so we can provide them with the top specialists across the nation. We believe in insurance for all and fairness for care. We don't believe I family should have to give up everything, including their dreams to qualify for Medicaid. It forces families unto poverty, a place a do not want. I want my kids to see that work is important, education and dreams can be reached even by them. That their is no date stamped oto their life. How, thogh can that be done if I cannot even do it? We know their are feelings on both sides but frm two parents who have seen both sides and have watched and known too many loss it all or loss their child due to restrictions of Medicaid.
All of these things we carry on our shoulders and they are as well. So trust me when I say, that each year we think they have done so much, we can't except another fundraiser but the truth is, we are all praying it happens for I do not know where we would be. Any parent knows what it means to provide for your family and I want more than anything a good job, one day a home and maybe a little bit of the life back we once had. Though each day when I wake, it's a great day to see my children. I thank God for that and all those he uses to help us.
Please make checUnion Bank, 3700 SW Cheddington Dr., Lee's Summit, MO 64082Make checks payable to Freezin for a Reason or contact Rich Lapetria 816-213-3037 or Reese Wolf 816-868-2188
http://www.facebook.com/#!/group.php?gid=206490024000
Abundant Life Baptist Church
Our hometown church hasn't given up on us either and they continue to pray and their Pastors are a phone call away. They have been the foundation of our family coming together in faith and that faith is for us in Jesus. Time and time again, we have leaned on this church and time and again, they have remained our church, even though we aren't sitting in a pwe, we are a part of this church as we listen to the sermons and enjoy keeping in touch with so many we miss. Many of whom are at Freezin For a reason in support of us. They have still been willing to accept donations on our behalf and can be done so by contacting Dave Williams at 816-554=8181
My husband and I are happy to talk to any parent who have a child they believe is sick or are sick, no matter the disease. It's a similar path of gathering records, knowing where to study and who is the best in the feild. 816-694-1040
I had done. The Fanconi's Anemia and Shwachman-Diamond as well as several others were thought off. Our doctor did diagnose them with SDS and the have one of over 100 immune diseases, PIDD. We are just so frustated with the years of studies, yet no answers are given back. We want to have the possible tests done on our own, though it's doubtful our insurance will pay.
FREEZIN FOR A REASON 2012Donations are still being accepted though Freezin For a Reason, contact Rick Lapetria 816-213-3037 or Reece Wolf 816-868-2188.
Other links and informtion is on the first link. Thanks
http://www.facebook.com/#!/group.php?gid=206490024000
Yet the Lord longs to be gracious to you; He rises to show you compassion.Yet the Lord is a God of justice. Blessed are all who wait for him! For the Lord is a God of Justice. Blessed are all who wait for Him! I saiah 33:2Jeremiah 29:11 For I know the plans I have for you, "declares the Lord. "plans to prosper you and not to harm you, plans to give you hope and a future.
ease make checUnion Bank, 3700 SW Cheddington Dr., Lee's Summit, MO 64082Plks payable to Freezin for a Reason email address: www.freezinforareason@comcast.net.
Abundant Life Baptist Church located at 414 SW Persels RD. Lee's Summit Missouri, 64081-2803
As you can see this group of sponsors continues to grow so large, and we (my family) really are not involved in organizing the event. Therefore, I know a have missed listing some really important contributors. I deeply apologize for that, but please contact me at so that I can add you to the list. We know many of you don't need the recognition but our family and kids really need to see who has given so much.Mark, Gail and The Lytle Family and so many more...Thank You!
The Winnebago Water Wizards
Lake Winnebago Community
Lake Winnebago Signal
Lake Winnebago Yacht Club
Dave & Gina Harris (matched donations to $10,000)
South Metro Fire and Emergency Response
Joenic Steel, LLC
berrydesign
Body by Jenn
Custom Play Systems, Inc
Don Davis, “Catfish Pimp”-best fish I ever had
Greg Wozmiak, True Compass Financial
Intrigue Studio (check out the sideshow on the homepage)
Jimmy Mac Construction
Joann Fischbach, A Place for Mom
Lake Winnebago Lions Club
Linda McCambridge, Reece & Nichols
Little Joe's Asphalt
Lytle Construction, Inc. (Thanks for keeping us warm)
Martha LaPietra, MD
Metro Tile Contractors
Osbourne Orthodontics
Perfect Promotions “Awesome Freezin for a Reason Long Sleeve Shirts”
Pyro City
Riffe Homes
Smiles by Dr. Jim Elias
Steve & Karen Turner
Lee's Summit Boats and Gear
Summit Construction
Tim & Jana Allen, Realty Executives Metro One
Union Bank
Lake Lotawana Ski Club (although no skiing, a couple of those guy's jumped in anyway)
Lee's Summit Journal
Kansas City Star
News Channel 5
Fox 4 news
NBC action news
Grandview Advocate
Those who broke boats breaking up the ice and those out for two weeks nightly and to their families who gave up time.
Thanks for those who turned out for Running for a Reason, we givve a special thanks to Monte Seabough and the time it took from her family. We love you and will never forget the kindness that has washed over our family. Monte, you have known and prayed for our Grace since we knew about her in my tummy along with Stacy Crabtree, Karen Harper and Julie Hartman and My sister, Machelle of course, for who always shares our needs and has helped me all my life just has my brother, Terry has. That was my sisters group who first surrounded us with prayer and love.I am forever grateful for my in laws,Jerry and Linda Cox, no two people could be so selfless and inlaw Aunt's and Uncles, Mary Ann and Scotty and Josh, who were their when Jake was born and helped me a great deal. Uggia buggia aunt annie!!!! You heard me when I was scared when Jake was sick. Of course, my daddy, the best one ever made, next to Chris! Held my son on his stomach and chest for a month straight!